Another Diagnosis

Most times new diagnoses don’t surprise me because I know its coming. I know way before my doctors when another illness has invaded. It usually doesn’t take long for me to readjust. I educate myself on my new illness; make any changes I can. Then move on and fight like a girl.

A few days ago I got a diagnosis that shook my world. It wasn’t a surprise but its a lot to wrap my head around at the moment. I have not been the same sense leaving the hospital. Things keep sparling out of control. I have Postural Orthostatic Tachycardia Syndrome. POTS effects multiple systems like Lupus.  My body is confused to say the least. It is having a hard time with involuntary functions such as regulating blood pressure and heart rate. I have an extensive history of passing out and having dizzy spells which is part of POTS. Lately I have been collapsing frequently as well. From what I know about POTS, it makes sense with my newer symptoms.

I have been spoiled by the Lupus foundation. They are very on top of things, give out information packets, I was able to speak with different people, and they have so many educational resources. In addition there are wonderful pages to like on Facebook and Lupus has some of the best support groups on Facebook. The Facebook support groups have been a blessing. I’m in a few. My first support group, Teens with Lupus, will always be my favorite. I have not found enough information about POTS. I love to know every detail about my illnesses so I know what symptoms go with what illness.

Once again I am in an adjustment period, learning the ropes with POTS. I know I am going to need to relearn how to do various daily activities. I am looking forward to speaking with my doctors about a new treatment plan. My prednisone has been increased because of my Lupus flare. Hopefully we can talk about replacing it with something else in addition to POTS medication. I hope you’re having a great day. Sending spoons, hugs, & prayers.

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Author: Victoria

Welcome, it is an honor you dropped by. I am Victoria. A twenty-something-year-old battling multiple chronic illnesses while learning how to thrive. Chronically Hopeful was designed to educate others and to provide support to those who are chronically ill. Proving encouragement to others is essential to me. I share my health on here. My major illnesses are Lupus, Hyperadrenergic Postural Orthostatic Tachycardia Syndrome, EDS, Mast Cell, Endo, and Ulcerative Colitis. I want to share my story with you hoping you will experience support; that someone else understands your pain, struggles, and frustrations. God has chosen not to heal me but to hold me. The more intense the pain the closer his embrace”. My faith, as a Christian has sustained me through the stormy waters of the past few chapters of my life. I desire to grow closer to God and lead others closer to Him. I help lead two online women’s Bible studies. I also post devotionals. I am pursuing my bachelor’s degree through Liberty University’s online program. Despite my illnesses, I have thrived in school. I am a member of Phi Theta Kappa Honor Society, Psi Chi the International Honor Society, and Tau Sigma Honor Society. Abby is my service dog in training. I also have three cats Gracey, Fluffy, and Sadie Rose. I am looking forward to hearing your precious story. Sending hugs, prayers, and spoons. Have an amazing day!

2 thoughts on “Another Diagnosis”

  1. Hello Victoria! I’m sorry that you are having to deal with POTS- it’s my main chronic illness and it can be a real pain. Information can be hard to find sometimes. Two good places to look are http://www.dysautonomiainternational.org and http://www.dynainc.org Both are friendly and fact filled and have Facebook groups and forms of support networks that you can get involved with. Lots of ((spoonie hugs)) to you as you figure out this part of your journey! ~Nic

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