Chronic Illness & Summer

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Summer became my favorite season as a teenager. The break from school was nice, but the adventure of summer was the most appealing aspect. Having the time to be outside more to hiking, swing, and go swimming. Just about every summer as a teen I went away with my church. From mission trips to camp to a pilgrimage in Taize.

Having Lupus has changed my relationship and view of summer. It is nice, but it is something that I would rather not deal with. I have severe sun sensitivity. Worst then the average Lupie. With in minutes of being in the sun, I begin to feel ill.  Sometimes even being in the car when the sun is out makes my symptoms worse. Currently I avoid the sun as much as possible, it is the only thing that works. Sun screen does not help me, though it makes a huge difference for many people with Lupus.

If you are sun sensitive be sure to take Vitamin D. Know your limits with Lupus. If you can be in the sun for an hour, just do an hour. Don’t push yourself more then your body can handle because that can and most likely will push you into a flare up.

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This will be my first summer with POTS. Dehydration is a concern for anyone in the summer, but even more so if you have POTS. People with POTS become dehydrated easily. The past few weeks I have been battling dehydration. My best advice for other POTies is to drink lots of water and Gatorade. The electrolytes are needed. Though I am new to the POTS world, I would advise people with POTS to be careful in the heat. Too much heat can cause someone to become dizzy and pass out. Again it is essential to find balance with any illness and summer.

What challenges do you face in the summer with your chronic illness? How do you cope with the challenges?

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Author: Victoria

Welcome, it is an honor you dropped by. I am Victoria. A twenty-something-year-old battling multiple chronic illnesses while learning how to thrive. Chronically Hopeful was designed to educate others and to provide support to those who are chronically ill. Proving encouragement to others is essential to me. I share my health on here. My major illnesses are Lupus, Hyperadrenergic Postural Orthostatic Tachycardia Syndrome, EDS, Mast Cell, Endo, and Ulcerative Colitis. I want to share my story with you hoping you will experience support; that someone else understands your pain, struggles, and frustrations. God has chosen not to heal me but to hold me. The more intense the pain the closer his embrace”. My faith, as a Christian has sustained me through the stormy waters of the past few chapters of my life. I desire to grow closer to God and lead others closer to Him. I help lead two online women’s Bible studies. I also post devotionals. I am pursuing my bachelor’s degree through Liberty University’s online program. Despite my illnesses, I have thrived in school. I am a member of Phi Theta Kappa Honor Society, Psi Chi the International Honor Society, and Tau Sigma Honor Society. Abby is my service dog in training. I also have three cats Gracey, Fluffy, and Sadie Rose. I am looking forward to hearing your precious story. Sending hugs, prayers, and spoons. Have an amazing day!

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