Saying No

They tell you that you have rights as a patient. That you and your doctor are on the same level. That is not always reality. If you disagree many times a doctor will get upset. As paticents we are expected to do what we are told. Most times our options are not taken into consideration. Many doctors assume that we do not understand what is going on at all and that we are uneducated. If we know something, they are shocked questioning why we know it and how we got the information. No offense but in this day and age acquiring knowledge is simple- it’s called the internet.

I have gone through countless medical testing all with an optimistic attitude. I smile though all the pain and attempt to make jokes (of course most people don’t find me funny). I understand that people are doing their job and I am doing mine to the best of my ability. Of course I vent in the car or at home. I have always been submissive and respectful. Taking everything the doctor says into consideration, even if I disagree.

At times I have been a gunie pig. I have went through testing that could have been avoided. I understand that many times testing is needed but it is draining, costly, and time consuming. A face biopsy is where I draw the line. I had my first biopsy last fall. I still have not healed completely from it. It might sound vein but I do not want a dark ugly scar on the middle of my face. My body has endured many procedures. It has never truly had a break. From age fourteen to twenty one every few months, it has been something. I know it is important to take care of myself. I feel apart of that is allowing my body to have a break from any invasive test. A time for it to rest, recover, and heal from the combat.

It is not easy telling your doctor that you disagree with them. They hold the power to diagnose you and they dictate your treatment plan thus they have a lot of power over your life. With a proper diagnosis and treatment plan you can function and have a life, with out it…. It is a miserable road of endless resting and searching for answers.

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Author: Victoria

Welcome, it is an honor you dropped by. I am Victoria. A twenty-something-year-old battling multiple chronic illnesses while learning how to thrive. Chronically Hopeful was designed to educate others and to provide support to those who are chronically ill. Proving encouragement to others is essential to me. I share my health on here. My major illnesses are Lupus, Hyperadrenergic Postural Orthostatic Tachycardia Syndrome, EDS, Mast Cell, Endo, and Ulcerative Colitis. I want to share my story with you hoping you will experience support; that someone else understands your pain, struggles, and frustrations. God has chosen not to heal me but to hold me. The more intense the pain the closer his embrace”. My faith, as a Christian has sustained me through the stormy waters of the past few chapters of my life. I desire to grow closer to God and lead others closer to Him. I help lead two online women’s Bible studies. I also post devotionals. I am pursuing my bachelor’s degree through Liberty University’s online program. Despite my illnesses, I have thrived in school. I am a member of Phi Theta Kappa Honor Society, Psi Chi the International Honor Society, and Tau Sigma Honor Society. Abby is my service dog in training. I also have three cats Gracey, Fluffy, and Sadie Rose. I am looking forward to hearing your precious story. Sending hugs, prayers, and spoons. Have an amazing day!

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