Yesterday Somehow Faded Away

Dainty soft pink slippers twirling high on toes few doors remained closed life an open book

Tapping rhythm to a new song always found a safe place to belong never even had to look

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and teardrops

 

The whole world lay in my back yard the only attack needing to be dodged was by dragons

Only things exist are what we created, only innocents of the wild imagination

Exploring wonderland unplanned adventure in all kinds of weather

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and teardrops

 

The world seemed against me could not yank free from the chains, oh the lies being fed to me

Unknown sadness filled my eyes had no reason but no choice I had to cry

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and teardrops

 

Finally I belong; these memories blanket my soul uncovering things that were buried in that hole

Overwhelmed with agape to the point of speechlessness anointed with blessing

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and teardrops

 

Oceans away miles apart I long for the peace cover in that place the ground covered in grace

It is how I escape all the troubles of the world love falling like rain soaking everyone in its embrace

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and teardrops

 

Only pictures remind of the past, memories fade with rain cause we know they never truly last

Pain consumes every inch of my being prying me away from the life that once was

Learning to dance in the storm though I pray for life to return to the norm

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

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Yesterday, somehow faded away

Dainty soft pink slippers twirling high on toes few doors remained closed life an open book

Tapping rhythm to a new song always found a safe place to belong never even had to look

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

The whole world lay in my back yard the only attack needing to be dodged was by dragons

Only things exist are what we created, only innocents of the wild imagination

Exploring wonder land unplanned adventure in all kinds of weather

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

The world seemed against me could not yank free from the chains oh the lies being feed to me

Unknown sadness filled my eyes had no reason but no choice I had to cry

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

Finally I belong; these memories blanket my soul uncovering things that were buried in that hole

Overwhelmed with agape to the point of speechlessness anointed with blessing

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

Oceans away miles apart I long for the peace coved in that place the ground covered in grace

It is how I escape all the troubles of the world love falling like rain soaking everyone in its embrace

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

Only pictures remind of the past, memories fade with rain cause we know they never truly last

Pain consumes every inch of my being prying me away from the life that once was

Learning to dance in the storm though I pray for life to return to the norm

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

A Caregivers Perspective. Part One.

Being a Mom of a Chronically Ill Child

Written By: Eileen Guyadeen

Being a caregiver of one who is chronically ill comes with countless challenges. Caring for an ill child is one of the most difficult things to do. Those who are ill rely completely on their caregivers. Being a caregiver can be a lonely, overwhelming, and blessed road. This post is to honor all caregivers, especially my own, my mother Eileen Guyadeen. Without her I would not be where I am today or who I am today. I could never express enough gratitude for all she has done for me.

-Victoria

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My daughter Victoria who writes this blog for chronic ill people, ask me if I would write something for it. I will start at the beginning, Victoria was born on my birthday which is January 28, 1994. She was a healthy baby at 6 lbs 8 oz. A blessing in every way possible, especially when my own doctor told me it will be nearly impossible for me because of myself having endometriosis, and like I told the doctor he is not God, and I truly believe with God all things are possible. My pregnancy went pretty well, listening to my doctor and doing whatever I needed to do to have a healthy child.

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Victoria was an active child by the time she was two and a half I had enrolled her in ballet classes, and she simply loved it too. She was small for her age and I kept her first ballet and taps shoes for my keepsake, because the dance teacher had a hard time finding things to fit her. She always loved playing outdoors all the time, during the summer she played in her pool, with her toys, and even loved reading outside all thru the beginning of her teenage years. In every way possible Victoria was always an active child. However over the years since she was a baby Victoria always seem to get a lot of viruses, doctor couldn’t always explain it to me why she did, always missing a lot of school. I remember by the time her ninth birthday rolled around she had a lot of stomach problems, she was out of school for three months, I finally started to record everything she ate and it was the diary that was making her so sick, so I cut it out from her diet. I spent plenty of times in the emergency room with her stomach problems never to know what was going on, and more important never an answer for what was going on.

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By the time she was in middle school when I took her to the doctor for the problem, her doctor thought she was trying to get out of going to school. I brought in her report card showing this child was an honor and high honor roll student, and loved being in school. Thru out high school my daughter’s health got worst, going thru five operations in four years. Her health got worst by the time she was a junior in high school that she was on homebound for school. By the time her senior year was about to start the principal of her high school share with us if Victoria miss more than ten days of school she would not be able to walk at her graduation. So with that statement Victoria ask me if she could Cyber School her senior year, and I agree that she could. She finished her senior year with 3.7 GPA, the night of her graduation it was very painful for her to walk at the ceremony, and I cried with her and said I know however you did it with honors in spite of your pain.

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Since Victoria graduated from high school things for her with her health has gotten worst. Doctors never can make up their minds for a treatment plan for her, it makes a person’s head spin. I have been ask so many times, how I do this with my daughter’s health. My answer to the question is my faith in the Lord Jesus Christ. With everyone appointment rather a doctor appointment, a trip to urgent care, test, or even the emergency room, and hospital stay, I carry along with me my Bible, why because I begin to search the scriptures for God’s promises. In the book of Jeremiah 29:11 it says For I know the plans I have for you declares the Lord, plans to prosper you, not to harm you, plans to give you hope and a future.  Victoria is a gift from God and I do believe that he loves her even more than her dad and I could ever love her.  Every time my daughter cries in pain, I say to her that God didn’t give us a spirit of fear, and I can do all things thru Christ who gives me strength (Philippians 4:13) we have cried together, as well as something more important which is to pray together. For God to give her the strength going thru this, as well as wisdom for her doctors, to see what He sees inside of her, because Jesus is the great physician. It is never easy, right before my daughter went off to college I had a meltdown. Yelling at God what did my daughter ever do to deserve this horrible disease, and then finally after I stop being angry at God, I heard a voice in my heart then why my son (Jesus Christ) in your place on the cross, I never ask that question again. I am always asking God for the strength thru all of this, we travel two hours each way to her doctors, and yes there has been many times I am total drain with running back and forth. I also have two other children to care for, which at times I feel as thro I have short change them thru this. I try to remember different things to get me thru, Stop, Drop, Kneel, and Pray, I have relied on God to get us thru this with my daughter. Jesus never promises anyone that once we accepted him as our own personnel savior, that our lives would be easy, he promises , surely I am with you always to the end of time (Matthew 28:20) I have seen my own personnel walk with Christ change for the better. I wanted to show Victoria, as well as my other two children, that life can become very hard for us at times, and thru those difficult time we need to run to the Lord, not away from him. Lean on Jesus and give him our burdens. In the gospel of Matthew 11:28 Jesus says these words Come to me, all you who are heavy burdened, and I will give your rest, Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden light. If anyone ever read the poems Footprints in the Sand, as you read these words it says, Lord you say that once I started to follow you, you would never leave me, so I don’t understand why was it at the difficult times I saw once one set of footprints, and the other times there were two. He replied my precious child during those hard times, it was then that I carried you. So I can picture during these hard times Jesus is carrying my daughter. Victoria is in the process of finishing her second year of college, in which she has been doing on line for a while. In thru all of her pain, doctors, test etc. Victoria has manage to be on the Dean’s list at Sussex County Community College, with a 4.0 GPA, as well as being inducted into the international honor society this past March. In the fall she will finish her BA degree at Centenary College which is not far from us, and then hopefully on to Drew University for her Master degree. Thru all of the medical problems that my daughter has gone thru so far, I have totally relied on my church family for prayer, as well as other family or friends, because pray to me is an essential tool we need to have with our daily walk with Christ. For me thru all of this I continue to walk with my Lord, with prayer, studying the scriptures and being involved in my church and just serving him. I continue to thank God for choosing me to be Victoria’s mom, I have been the one who has been bless. Yes it has been difficult with her disease, you see she has lupus which is an autoimmune disease, however it doesn’t define who she is and that is she is the daughter of the most high king Jesus Christ.

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My Faith

I’m fairly certain that I have mentioned my faith on my blog a couple of times, briefly. I have been a Christian nearly my entire life and my faith plays a big role in my life. I was saved at the early age of three years old in Sunday school.  People tell me from a young age I knew a lot about the Bible. I had an extremely close walk with God. I would tell my mom that God talked to my heart. I understood that prayer was a dialogue not a monologue. I understood the meaning of communion and a lot of Bible stories. I adored going to church, Sunday School, and Vacation Bible School. With all my heart I wished that Sunday School was five days a week and actual school was one day a week. Things made more sense to me at church and I fit in much better.  I counted down the years until I would be able to join the Youth Group. My favorite television shows included The Donut Man, Veggie Tales, Mrs. Charities  Dinner, and other shows on the Christian station. Outside of the American Girl Doll books every book I read had a Christian aspect to it. Despite the fact I was a shy girl, I was bold and confident in my faith growing up. I wasn’t afraid to speak up about it, even if that meant I did not have many friends and that kids would tease me. It was me and Jesus and that is all that mattered to me.

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Once my middle school years rolled around I overflowed with excitement because I was finally old enough to join the Youth Group. I was extremely involved in my church during my middle school and high school years. Anything and everything I could do, I did. I spent as much time as possible at church. During my middle school years in addition to Youth Group I volunteered at every function the church had, was in the bell choir, puppets, and attended every youth group meeting. I enthusiastically participated in 24 Hour Famine. Just before we broke our fast I grabbed my friend informing her I couldn’t see, then passed out. Once I woke up I wanted to know when the next famine was. Despite passing out I had a lot of fun.  I did not have many friends at school so I would bring my awesome looking Revolve Bible to lunch to read. (If you are a teen girl check out the Revolve Bibles! They look like magazines, are super cool, and have lots of epic things in addition to being a Bible.)

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Even though I struggled with my faith a bit in high school, it was still vital to me and I was just as involved in my church. I went on missions trips with the Youth Group and feel in love with mission work. I went on several retreats as well. I still adored reading. The Christy Miller series by Robin Jones Gunn impacted and changed my life. During my teenage years I battled some depression. It was difficult but in the end I became closer to God. I learned many valuable lessons through that chapter. Things changed in my home church, some ministries crumbled. I was on a committee and still volunteered frequently. I also helped run a retreat for five years. When I was sixteen years old I went to Taize France with the conference through my church. It was a pilgrimage and an indescribable experience.

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My dream had always been to go to a Christian college, which is what I did once I graduated high school. However that was not God’s plan for me. (Of course I was less then happy about it). The school I choose was three hours from home. I had high hopes for my health. I thought the doctors there would be the best and would help me feel better. But that was not the case. None of them wanted to help me and my health quickly declined. After finding blood in my urine over Thanksgiving break I had to stay home indefinite.  Having to come home was bitter sweet. I knew I had to do it yet I wanted to prove that I could be on my own. A lot had changed in my home church, as I mentioned before. As much as I loved everyone, I wanted a fresh start. Something different. But that’s not what God had in store for me.

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I have been back home for a little over a year now. Things have gotten better at my home church. The spiritual growing pains have eased and I am able to see how blessed I am to have my church family. My walk with God isn’t where I want it to be. There is always room to grow. I have learned to trust him in new ways. I know that He will guide me and provide for me everything I need. Though I don’t know what the future holds, God does. I am content where I am right now, waiting for His direction and learning.

God Bless. Sending lots of Spoons, prayers, and hugs ❤