Welcome December

I adore the Christmas season, it is absolutely magical. Beauty overflows all around from stunning lights to warm smiles to traditions and so much more. Christmas carols sweetly fill the air. The Christmas season brings joy as it reassures us gently that things will be okay. It helps us connect with our inner child reminding us of the wonderful Christmas memories. At the same time, it encourages us to move forward filling us with a hope like no other. It unites us with those we hold dear in our hearts. I cherish every aspect of Christmas.

Unfortunately chronic illness and the stressful demands that go with it does not take a holiday. The doctors appointments, treatment, and testing still must be done. Chronic illness tends to complicate things and get in the way of our joy during this season. It is easy to lose focus of the beauty in this season when we are consumed with emotion and pain. When the world seems to be caving in on us and everything seems to be falling apart. Chronic illness isolates us. We feel the effects more so this time of year. Finding a balance between doing things and resting becomes more difficult. For some, this season is depressing, reminding them of all they cannot do.

I hope you are able to take the time to rest and reflect this holiday season. Take to reflect about all the ways you have grown as an individual, all you have accomplished, all the blessings in your life, and everything you have overcome the past few months. You, my friend, have come so far. I am proud of you. You deserve to take time for yourself this busy season. You are an inspiration. Your story is breathtaking and laced with beauty along with encouragement it will change lives. I pray your strength is renewed. The Lord will bless you greatly this season, be open to all he has to offer for you.

I pray you would have a flare free Christmas season. I hope that despite your pain you are able to enjoy this season of blessing. Cherish every moment with those you hold dear to your heart. Hold onto the Christmas spirit. I pray that this season would bless you with little to no pain, plenty of spoons, memories, joy, and love. “It’s beginning to look a lot like Christmas.”

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Slowing Down in Gratitude

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Hurry has become an addiction in today’s culture. How many times are we rushing through the day? We are in such a hurry, we cannot enjoy any moment, each moment becomes something to check off the to-do list. Overcome with stress.

Many nights before I go to bed, I recite my to-do list for the following day, hoping, that I am not forgetting anything. Hurry, business, and the to-do list becomes an idol if I am honest with myself. Are these idols in your life as well?

Chronic illness has forced me to slow down, but I still need to work on being more present in the moment. “Giving thanks for one thousand things is ultimately an invitation to slow time down with weight of full attention.” Ann Voskamp What if I pursued thankfulness more than anything else? If in each moment I thanked God for something instead of letting my thoughts wander, creating meaningless chaos, or run with emotion.

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Looking back I see serval things I am thankful for, even in situations that were painful. I do not rejoice in the pain or situation but carefully laced in there is a tiny treaure to give thanks for. Thankful for pain as a warning sign when my body threated to shut down, the medication received, and my nurses. Thankful for the closeness of Christ when my friends deserted me. I honestly feel if more often I would give thanks in the middle of the day that I would experience more joy. Like Ann Voskamp shared, I would enter more fully into each moment.

Ann recorded one thousand gifts in a journal. A simple yet genius idea. One thousand seems like a large number. An enormous commitment. However, each individual must begin with one, anyway.  I came to the conclusion that aiming for one thousand could encourage this to become a burden which would defeat the purpose. So, I grabbed a journal with few expectations in mind. Simply writing things I am thankful for from now until this time next year.

Let me share a few of the gifts I have taken note of.

  •  My mother whom is my source of strength, encouragement, and inspiration.The stunning woman she is. Words cannot describe how thankful I am for her or for how many things I am thankful for.
  • The pitter padder of children’s feet. The embrace of little friends.
  • The smell of kitties fur. Their comforting fur.
  • Capturing tiny moments with Abby in photos.
  • God’s presence. Faithfulness. Who He is.

I would be humbly honored if you, my friend, would join me on this journey of journaling gratitude. More than that to live an abundant life of thanksgiving. Taking time to pause and give thanks. Enriching daily life.  There is no better time to start than now. I have crafted three inspiration of gratitude lists; one for those with chronic illness, college students, and mamas. I hope you will print one out. Copy of Wedding Invitation

 

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El Elyon (God Most High),

Your beauty takes my breath away. Every molecule reflects who You are and worships You. Holy, holy, holy is the Lord God Almighty full of wonder, majesty, and goodness. I witness Your faithfulness daily.

Often, I overlook the blessings in my life. Forgive me, Lord Jesus. I desire to divorce hurry. Enable me to slow down and to enter into each moment fully with a thankful heart. Give me eyes to see Your beauty and glory in the ugly. Cultivate in me a thankful heart.

Amen

When A Warrior Passes

Honestly, I have wanted to write this post for a good two months, but it has been difficult to write.

You know once you have transported to the world of chronic illness that one day you will be devasted when someone passes away. However, you are never ready enough for that moment.

I had expected to eventually lose someone in a Facebook support group not someone I went to school with. Two weeks before she passed I ran into her mom while food shopping. I barely remember anyone from high school and it is embarrassing as well as frustrating for me. But when her mom said her name I could picture her sitting next to me in middle school. I had assumed she moved not that she was chronically ill with at least one of my illnesses. I promised her mom I would talk with her and we could hang out. Her mom said they were attempting to get her paired with a service dog. I was so excited at the possibility of having an in person chronically ill friend my age.

I didn’t hesitate finding her on Facebook.I tried to be patient waiting for her to response constantly reminding myself she was flaring. Within hours I found out I was too late and it broke my heart in a new devasting way. I immediately regretted not connecting with her sooner. I know she suffered way too long and things were horribly unfair. She should be going to college and building a life for herself.

Lossing someone who has one of your illnesses or who is chronically ill is extremely different. I have balled my eyes out many of times for a life of a fellow warrior that I barely knew. My heart goes out to the families in a unique way.  I might not have known them well or maybe not at all yet I live a small part of their story. I live the pain, doctors, symptoms… the life of a spoonie.

The grieving seems to be unique to those with chronic illness. There is an element of guilt for living because you know it could have been you. You wonder why it was that person, what if someone listened better, could it have been avoided, or will that be me one day. Frustration with the health care system at times.  Angry with the people who brush us off.

It has been a few months but from time to time she’ll come to my mind. I wish I remembered more about her other than her pretty hair and sweet voice, like an actual conversation. This death has been completely unique in the way it affected me.

Anytime someone passes with a chronic illness around your age it hits home and it is difficult. When you lose someone to chronic illness allow yourself time to grieve. If someone in the chronic illness community you know passes find a special way to say good bye and to pay your respects. When a girl passed with IBD a few weeks back, I found great comfort in leaving her family a message on an online guest book in honor of her.

Regardless of how close you were let yourself cry if you need to.  Give yourself permission to get angry, to feel hopeless, or broken. Emotions are healthy. They are indicators of things going wrong and of heartbreak. However, emotions are not your dictator so once you have allowed yourself to feel you need to slowly move forward. Allow yourself to heal slowly. Seek support from others who are chronically ill, family, and friends. Cherish each moment in life and live them to the fullest as best you can.

 

 

Shake it Off

Living with a chronic illness is a challenge beyond words when encountering people who don’t understand. We have all had an experience of rudeness beyond belief. There are stairs when taking medication in public. Rude remarks when using a walking device. 

 I cannot tell you how many times people have been disrespectful or stared at me because I use a wheelchair in a store. The majority of the time people either stand in front of me, unwilling to move or practically run away. People act like I have the plague. I have heard over the few years I have used a wheelchair in a store that I am too young to use one or too pretty. The stairs and remarks make me feel like I owe people an explanation. However, I do not need to explain my life to everyone I encounter. If the right doors are open to education someone I don’t mind but there shouldn’t be a social pressure to explain it all. 

 Many people doubt the intensity of our pain and they question if we are indeed really sick. No one seems to understand battling against your body and taking care of yourself is a full-time job. Simple tasks are draining. Some people go out of their way to upset us or to be rude. They offer unnecessary options on how to break free of the chronic illness chains.

 

Too often Spoonies lose friends due to their illness. Some people want absolutely nothing to do with us while others act strangely towards us. 

Too often people judge us before they get to know us. People treat us at times like we are nothing or are stupid. 

Too often we hear phrases like: 

But you don’t look sick

You need to be more positive

Have you tried…

You’re too young to be sick

It must be nice not having to go to work/school

You’re just having a bad day

You need to get more exercise

It’s all in your head

Maybe if you got out more

These things get under a spoonies skin, to say the least. When people mistreat you, SHAKE IT OFF. It is not your fault. Don’t let them get to you. You are an amazing person. Even though you are ill, you are so valuable. You have so much to offer this world. Shake off the stares, Shake off the negative and nasty remarks, Shake off the heartbreak…. Shake it off.. It’s gonna be alright

Hold your head up high, cause it’s gonna be alright. You have so much courage. You are an inspiration for thriving despite every setback. Sending lots of spoons, prayers, and hugs. ❤

Introduction to Psalm 5

It is simply an honor that you have dropped by! My prayer is that you will be a little encouraged or learn something here. This is a simple introduction to Psalm chapter five. Furthermore, look out for the next Psalm five post coming soon!

“The various psalms reflect nearly every human emotion: unbridled joy, deep-seated jealousy, seething anger, hope, and depression. These are only a few of the emotions behind the poetry we hear expressed in individual psalms. Feelings and emotions are central to what it means to be human. We cannot escape them nor should we. Psalms invite us to take the emotions we feel and bring them before God. This book model how to come before God in times of sadness, brokenness, and joy. Psalm 5 is a cry for help and a plea for guidance by a person who suffered at the hands of an enemy. It talks about the morning as the time to pray and listen for God to answer. Like many laments, it begins with a cry but ends in confidence.” Biblegateway.com

Psalm Chapter five is an emotionally rich chapter, yet consists of only a few verses. Another sorrowful Psalm crafted by David as he fled from Saul. His mature faith shines throughout the chapter as he not only pours out his heart to God but also praises Him. This Psalm is parallel to 1 Samuel 18-20, which I highly encourage you to read as well to gain a deeper understanding.

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 Clearly, this is a prayer, furthermore a brief overview of how our prayer life should look. Prayer is a complexly beautiful gift extended to us. “Words are not the essence but the garments of prayer.” In addition, prayer is longings beyond words, worship, and listening with a still heart to God’s voice. “Moses at the Red Sea cried to God, though he said nothing. Yet the use of language may prevent distraction of mind, may assist the powers of the soul, and may excite devotion.”

“Utterance is of no avail without heart, but that fervent longing and silent desires are accepted, even when unexpressed.” Humans make prayer into something formal with rules that Christ never intended. Perfection is not an element of prayer, yet it is accomplished in the Fathers eyes when we are seiner. I love how Rachel Wajo puts it, “you have permission to ache freely.” Christ desires for us to pour out our hearts. For us to share with Him every detail of every element of our lives and to share every emotion. He desires your heart even though it is not in perfect condition, even if you feel it is shattered and stained by sin.

It can be tempting to pretend that we have it all together and are just a step away from perfection. Aiming for the perfect body, perfect career, perfect family, and perfect relationship with Christ. Society has us in the mind frame that we can achieve perfection. The media whispers that everyone but you has it all together. We don’t want to be a burden to those around us so in a way we isolate ourselves in pretending it is all fine.

Lord,

We proclaim how great you are and tell of the wonderful things you have done. You are our strong defender. Our source of life. You have blessed us beyond understanding. All honor, glory, and praise be to Your name now and forever.

We praise You for the holy gift of Your word. Enable us to cherish it and engrave it on our hearts. Let us see clearly so that we may take in the amazing things coming from Your Word. Open the eyes of our hearts. We are eagure to receive Your Word. Bless us with understanding. Help us to apply Your Word to our life today.

Amen

 

Spoonful of Spoonie Encouragment

Mornings for those with a chronic illness are a struggle beyond words. Waking up and willing our bodies to function is a fight. Here is a spoonful of encouragement for spoonie warriors. Happy Monday, brave friend!

You have victoriously made it out of bed this morning. The symptoms and pain are already overwhelming, but you’ve got this. You only need to take today one minute at a time. You have all the strength you need, even though it might not seem that way. Anxiety and depression attempt to dictate your day. Take a breath. Take a break.  Get some rest. Keep fighting to make today the best day possible.

You have been chosen to walk this path. It is one filled with heartbreak, disappointment, and setbacks. Walking the path of someone who is chronically ill is a challenge to say the very least. Being sick has most likely disrupted your flawless rhythm with life. It has stopped you dead in your tracks. Your illness has tried to toss your dreams out the window.

Though this path is difficult, I assure you there is a lot of beauty to be discovered. Sure life is not what it used to be, but the song you sing is just as beautiful. There is hope, joy, love, laughter, and life to be found on this path. You will be able to recreate your wonderful dreams. You are still you, despite your illness. You are an amazing and beautiful person with a flawless story and a huge purpose.

    There will be days that you become overwhelmed and feel completely alone. Your feelings are understandable, however, I promise you, you do not walk alone on this path. There are people who care about you, people who understand how difficult the journey is, and people who want to support you.

I am proud of all you have accomplished. I know you will thrive today. This week will be lovely simply because it is the only choice. While you don’t need to be positive all the time you need to take baby steps forward. You are doing amazing. Raise your coffee (or tea) to a great week warrior!

Meaningful Words

This poem is dedicated to all the courageous chronic illness and emotionally ill people who have tragically lost friends. To all, those who have encountered broken promises. You are so much stronger than you will ever understand.

Meaningful Words:

Don’t say I love you

If you’re going to walk away

Don’t say you care

If you’re not going to be there

 

I have heard it all before

No strength to listen to the lies anymore

You can just walk away

No one is making you stay

 

Walked out in my time of need

Refuse to plead

Don’t say you care

If you’re not going to be there

 

I am strong I will

I will just move along

Surviving without you

There is nothing I can do