Welcome December

I adore the Christmas season, it is absolutely magical. Beauty overflows all around from stunning lights to warm smiles to traditions and so much more. Christmas carols sweetly fill the air. The Christmas season brings joy as it reassures us gently that things will be okay. It helps us connect with our inner child reminding us of the wonderful Christmas memories. At the same time, it encourages us to move forward filling us with a hope like no other. It unites us with those we hold dear in our hearts. I cherish every aspect of Christmas.

Unfortunately chronic illness and the stressful demands that go with it does not take a holiday. The doctors appointments, treatment, and testing still must be done. Chronic illness tends to complicate things and get in the way of our joy during this season. It is easy to lose focus of the beauty in this season when we are consumed with emotion and pain. When the world seems to be caving in on us and everything seems to be falling apart. Chronic illness isolates us. We feel the effects more so this time of year. Finding a balance between doing things and resting becomes more difficult. For some, this season is depressing, reminding them of all they cannot do.

I hope you are able to take the time to rest and reflect this holiday season. Take to reflect about all the ways you have grown as an individual, all you have accomplished, all the blessings in your life, and everything you have overcome the past few months. You, my friend, have come so far. I am proud of you. You deserve to take time for yourself this busy season. You are an inspiration. Your story is breathtaking and laced with beauty along with encouragement it will change lives. I pray your strength is renewed. The Lord will bless you greatly this season, be open to all he has to offer for you.

I pray you would have a flare free Christmas season. I hope that despite your pain you are able to enjoy this season of blessing. Cherish every moment with those you hold dear to your heart. Hold onto the Christmas spirit. I pray that this season would bless you with little to no pain, plenty of spoons, memories, joy, and love. “It’s beginning to look a lot like Christmas.”

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Thanksgiving

Crips fall beauty lingers in the air as people hurry to prepare. Nature adorn in the finest hue crafting an elegant view. Thankfulness consumes each heart uniquely setting people apart.

An individual’s definition of thankfulness is transformed when chronic illness enters their life. Simple things possess deep pleasure. Such as a walk in the park or a phone call with a friend. The delicacy of life is illuminated. Cherishing moments with those they adore is vital. Laughter is treasured.

A person’s list of blessings is as exclusive as their heartbeat, which is especially true of someone with a chronic illness. Generalizing thankfulness in the chronic illness world is nearly impossible, so I will share a few blessings of my own.  I am grateful for my medical team. I have made progress from the time I entered this facility. This is the best hospital I have been at. I am deeply blessed for the chance to be on Remicade. Though I don’t like being on medication, I am grateful to have it and for the help it provides. I am thankful for the friends I have made. The support that I have. The lessons I have learned from chronic illness.  I am thankful beyond words for the chance to continue my education at Liberty University online. I feel spoiled with the resources available to me. Fiction books provide a way of coping with pain and I have been blessed recently by Karen Kingsbury’s books.

These are a few examples of blessing from my life as a chronic illness warrior. I hope Thanksgiving day is a day you can cherish. One that is consumed with love, laughter, joy, and spoons. I pray the pain levels are low and the symptoms are few. Happy Thanksgiving Warriors!

Shake it Off

Living with a chronic illness is a challenge beyond words when encountering people who don’t understand. We have all had an experience of rudeness beyond belief. There are stairs when taking medication in public. Rude remarks when using a walking device. 

 I cannot tell you how many times people have been disrespectful or stared at me because I use a wheelchair in a store. The majority of the time people either stand in front of me, unwilling to move or practically run away. People act like I have the plague. I have heard over the few years I have used a wheelchair in a store that I am too young to use one or too pretty. The stairs and remarks make me feel like I owe people an explanation. However, I do not need to explain my life to everyone I encounter. If the right doors are open to education someone I don’t mind but there shouldn’t be a social pressure to explain it all. 

 Many people doubt the intensity of our pain and they question if we are indeed really sick. No one seems to understand battling against your body and taking care of yourself is a full-time job. Simple tasks are draining. Some people go out of their way to upset us or to be rude. They offer unnecessary options on how to break free of the chronic illness chains.

 

Too often Spoonies lose friends due to their illness. Some people want absolutely nothing to do with us while others act strangely towards us. 

Too often people judge us before they get to know us. People treat us at times like we are nothing or are stupid. 

Too often we hear phrases like: 

But you don’t look sick

You need to be more positive

Have you tried…

You’re too young to be sick

It must be nice not having to go to work/school

You’re just having a bad day

You need to get more exercise

It’s all in your head

Maybe if you got out more

These things get under a spoonies skin, to say the least. When people mistreat you, SHAKE IT OFF. It is not your fault. Don’t let them get to you. You are an amazing person. Even though you are ill, you are so valuable. You have so much to offer this world. Shake off the stares, Shake off the negative and nasty remarks, Shake off the heartbreak…. Shake it off.. It’s gonna be alright

Hold your head up high, cause it’s gonna be alright. You have so much courage. You are an inspiration for thriving despite every setback. Sending lots of spoons, prayers, and hugs. ❤

Spoonful of Spoonie Encouragment

Mornings for those with a chronic illness are a struggle beyond words. Waking up and willing our bodies to function is a fight. Here is a spoonful of encouragement for spoonie warriors. Happy Monday, brave friend!

You have victoriously made it out of bed this morning. The symptoms and pain are already overwhelming, but you’ve got this. You only need to take today one minute at a time. You have all the strength you need, even though it might not seem that way. Anxiety and depression attempt to dictate your day. Take a breath. Take a break.  Get some rest. Keep fighting to make today the best day possible.

You have been chosen to walk this path. It is one filled with heartbreak, disappointment, and setbacks. Walking the path of someone who is chronically ill is a challenge to say the very least. Being sick has most likely disrupted your flawless rhythm with life. It has stopped you dead in your tracks. Your illness has tried to toss your dreams out the window.

Though this path is difficult, I assure you there is a lot of beauty to be discovered. Sure life is not what it used to be, but the song you sing is just as beautiful. There is hope, joy, love, laughter, and life to be found on this path. You will be able to recreate your wonderful dreams. You are still you, despite your illness. You are an amazing and beautiful person with a flawless story and a huge purpose.

    There will be days that you become overwhelmed and feel completely alone. Your feelings are understandable, however, I promise you, you do not walk alone on this path. There are people who care about you, people who understand how difficult the journey is, and people who want to support you.

I am proud of all you have accomplished. I know you will thrive today. This week will be lovely simply because it is the only choice. While you don’t need to be positive all the time you need to take baby steps forward. You are doing amazing. Raise your coffee (or tea) to a great week warrior!

Happy Monday

Happy Monday, precious friends! Monday’s don’t have the best response in our society as we tend to focus on the negatives instead of the positives of the week ahead. Monday’s might not be your favorite day, but it is a lovely reminder that you have been blessed with another week of opportunities. Yes, there are plenty of struggles you will encounter and things you would prefer not doing but there are many positives of a new week. Pause to take in the simple treasures of life. Greet this new week with your beautiful smile and open arms. You will have victory over this week. You will be a blessing to a number of people. You, my friend, will thrive.

From Honest Moments With God:“My soul is dry and thirsts for You, True God, as a deer thirsts for water. Why am I so overwrought, Why am I so disturbed? Why can’t I just hope in God? Despite all my emotions, I will believe and praise the One who saves me, my God.” Psalm 42:1 & 11

“My soul is dry and thirsts for You, True God, as a deer thirsts for water. Why am I so overwrought, Why am I so disturbed? Why can’t I just hope in God? Despite all my emotions, I will believe and praise the One who saves me, my God.” Psalm 42:1 & 11

God,

Increase our soul’s thirst for You, the Living God. You have seen the tears cried behind closed doors. The ones in the dead of night. You understand the heartbreak of shattered dreams. The depth of the effects of broken relationships.

People mock me and question my faith. Asking where You are in my time of need. They question Your goodness. Question how You could allow suffering. I will remain unshaken, firm in Your promises.

Help me in this holy time, at Your feet, to pour my soul out to You. Enable me to be transparent. I surrender every burden, fear, question, and emotion. Empty me of myself. Free me from all the clutter in my heart and mind. Consume me with Your Spirit.

Direct me in Your precious love. Renew my hope day by day. You are my mighty protector. I rejoice in Your sovereign name. I have witnesses Your goodness all the days of my life. I extol Your Majestic name.

Amen

 

 

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Valentine’s Day

It is a lovely day honoring those we love. To cherish our spouse. A day of cards and candies for children already sweet enough. On the other hand, it can feel discouraging for those who don’t have a significant other. Regardless of where you fall on this Valentine spectrum hear me out. In addition to the mushy stuff, today is a day to honor God, be compassionate to ourselves, and bless someone in our lives.

This day is more than a reminder of our precious love story. It is a reminder of the ultimate love story. “Because of this, the love of God is a reality among us: God sent His only Son into the world so that we could find true life through Him. This is the embodiment of true love: not that we have loved God first, but that He loved us and sent His unique Son on a special mission to become an atoning sacrifice for our sins.So, my loved ones, if God loved us so sacrificially, surely we should love one another” 1 John 4:911 The Voice Translation. Take time out of your busy schedule to sit down and have a quality quiet time in honor of Valentine’s day. Spending time with God will without a doubt sweeten your day! Try something different such as praising Him in a new way or writing out Scripture or recording your prayer.

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The Father gently and compassionately handcrafted every cell in your body. He thoughtfully constructed your character. Zealously selecting your talents. The beauty He bestowed on you has depth beyond physical appearance. He delights in You. You dear friend, are the apple of His eye. God is pursuing you. He is doing a mighty and awe-inspiring work in your life beyond your dreams. Blessings are around the corner.

I want to encourage you, precious friend to take even just five minutes to be compassionate to yourself. It can be something extremely simple. A few examples include; making a cup of tea, reading a book, enjoying some time of silence, or doing a face mask.  Brothers and sisters, in light of all I have shared with you about God’s mercies, I urge you to offer your bodies as a living and holy sacrifice to God, a sacred offering that brings Him pleasure; this is your reasonable, essential worship Romans 12:1.

Lastly, do something sweet for someone outside of your family. Maybe even someone you aren’t close to or someone enduring a struggle. We love because He has first loved us. 1 John 4:19. We are called simply to love on another and to share one anothers burdens. Send a note of encouragement. Offer to help a new Mama with her children. Make a meal for someone who is chronically ill. Ask your friends how you can be specifically praying for them and then pray with them there. Find a simple way to let another person know that you care.

Wishing you a day consumed with love. A day of joy. Time to honor the Lord, those you love, and yourself.

 

Friday Encouragment

Happy Friday, friend! I am beaming with joy because you have made it another week. Despite the difficult moments, you have thrived. Moving forward each moment you have claimed victory. You have demonstrated grace and courage this past week.

As you pour your cup of coffee reflect on the moments of joy this past week. Remember the victories of this week. You have made progress. Your worth is not measured by your to-do list or other people’s expectations. You are cherished just because there is breath in your lungs. Treasured, simply because of the unique person you are.

Allowing yourself to rest is indeed moving forward. Your body works hard. Rest is not wasting time. Rather it is preparing you for whatever task you do next weather that is getting some water or going out to visit a friend.

Embrace this chilly and lovely day with an upbeat attitude.  Remain firm in hope. Laugh as much as possible. Enjoy the small blessings. Let thankfulness consume your precious heart. Sending spoons and hugs.