Encouragement

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It is difficult when your illness dictates your life. When you are taped with no way out. Unable to live. Merely surviving one moment at a time. Hope seems light years away. Everything seems to crumble right before your eyes. Everyone has days when they break. It is okay to have break downs as long as you don’t give up. You have everything you need to overcome these struggles.

You are NOT alone. Others feel this way as well. It won’t be like this forever. Eventually you will be able to live life to the fullest again. We must hold on to this hope, for it gives us the strength to keep fighting. Keep your faith. Stay strong. Hold onto hope.  You have so much strength and courage. You accomplish amazing things on daily. Be proud of all you have overcome.

It’s a season for beauty and blessings. Your strong will provide strength and hope to countless people. There will be positive things that occur because of this difficult season in your life. God’s got this. Rest in his loving arms. Blessing are just around the corner. Be open too receive all the Lord has to offer. Gentle hugs spoonie warriors. Sending prayers and spoons.

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Introducing my invisible companion – pain

A sweet member of Chronically Hopeful, Angela, is sharing a beautiful post with us today. Thank you from the bottom of my heart for taking the time and spoons to be here with us today.

Bio from Angela,

I am a christian and lay-preacher. I worked in finance for 25 years but I am currently unemployed and looking for a new opportunity when my pain is managed effectively. I enjoy writing, public speaking, mentoring young people and spending time with family and friends.IMG-20170818-WA0004

 

When you meet someone for the first time, what do you think that they see or observe about you? Maybe the color of your eyes? Your radiant smile? Your height? Weight? Or whether or not you wear spectacles, walk with a cane or use a wheel chair? It is possible that a person may see and notice all of these outward features but for me, there is one thing that whilst all-encompassing to me, it is something that no one sees. I consider that it is significant but it is also invisible (at least to the untrained eye), and that is my pain!

Pain, caused initially by an injury and then by disease. Pain that wakes me up and often prevents me from sleeping. Pain that dictates my activities or lack of them. Pain that varies, but is my closest companion. I have never asked for its presence, but daily I am forced to contend with this intrusion, this reality, something that cannot be explained and that has a devastating effect on the quality of my life.

 

My “relationship” with pain, for want of a better word, began in the autumn of 1989 following a serious road traffic accident. For about six months I was unable to leave the house alone and needed help with every aspect of my life. Over the months that followed, my father and the physiotherapy team at my local hospital helped me to recover my strength thereby allowing me to return to work.

It was my dream to return to the relatively pain free life with the energy and freedom that many of my peers in their mid 20’s enjoyed. Sadly this was not to be and I had to find and accept a new and unwanted reality. Even though I was a Christian, this was still a challenge.

I was truly grateful for life, after all, how many people do you know that have been knocked over by a fire engine on call and have lived to share their testimony? I knew that I was blessed, but somehow at the back of my mind, there were some nagging questions: Why did this happen to me? Did I do something wrong? Suppose I had taken another route home or left work on time would things have been different?

 

As I battled with questions that I could not answer, I had further complications as I encountered a modern-day equivalent of Job’s comforters. People came to pray, give thanks, and to comfort me but sadly a few came to discover what “secret sins” I had committed that had led to this terrible accident.

Over the next few years as I grappled with the effects of widespread chronic pain, I found myself dealing with people who demonstrated a lack of understanding about chronic conditions and whether or not my pain was real or imagined. I asked God for healing, friends and family came for special prayer sessions, but when healing did not come, my faith was questioned.

 

What do you do when the promises of God don’t seem to apply to you or when you look around and hear stories of miraculous healings? When people question your desire to be healed, to be whole, to once again contribute to your church, your community, your family or even take care of yourself?

 

I didn’t have the answers or the strength to cope with them alongside the fatigue, nerve pain and all the challenges that both fibromyalgia and complex regional pain syndrome, brought to my life.

 

Moving forward however, I try to encourage myself and others by what God shows me through His Word. No matter how hard it is, I still have HOPE! Why? Well after nearly 20 years in chronic pain, I had another life-changing accident, one that left me unable to work and crippled by excruciating pain. Yet in all of this time I have been able to eat, have a roof over my head and I have my basic needs met. Has it been easy? Absolutely not! I lost some things that were important to me but I held on to that all-important, life-saving ingredient, Hope! Here’s how the Apostle Paul describes it in Romans 5: 3-5 ESV:

“3 Not only that, but we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.”

Hope as described here keeps us from being disappointed. Life is difficult for those who are suffering, but believing that a better day is coming, gives us hope. The Apostle Paul also has a disability, we are not told exactly what it is, but we know that he prayed three times for it to be removed.  When God chose not to, Paul accepted that God’s strength would be revealed in Paul’s weakness:

2 Corinthians 9: 7-10 Message

7-10 “Because of the extravagance of those revelations, and so I wouldn’t get a big head, I was given the gift of a handicap to keep me in constant touch with my limitations. Satan’s angel did his best to get me down; what he in fact did was push me to my knees. No danger then of walking around high and mighty! At first I didn’t think of it as a gift, and begged God to remove it. Three times I did that, and then he told me, my grace is enough; it’s all you need.
My strength comes into its own in your weakness. Once I heard that, I was glad to let it happen. I quit focusing on the handicap and began appreciating the gift. It was a case of Christ’s strength moving in on my weakness. Now I take limitations in stride, and with good cheer, these limitations that cut me down to size—abuse, accidents, opposition, bad breaks. I just let Christ take over! And so the weaker I get, the stronger I become.”

 

When I feel weak I go to God to receive strength from Him so that I am able to continue with the life that God has given me. I have lived with chronic pain for 28 years now and some days I am unhappy about the pain that I feel, that no one appears to understand and that no one sees. When my invisible companion tries to control my life, I try to reflect on better days and lift my heart to God who gives me hope.

Christmas Cookies

Baking is an enjoyable part of the Holiday season. I have been extremely spoiled, every season there is something homemade my mom makes for us from applesauce to pies to cookies to candy. I always enjoyed assisting her in baking, especially during the Christmas season. It has been difficult for me to bake on my own because of POTS and a lack of energy. I am going to share some cookie recipes with you. Some are spoonie friendly, others just taste good and are worth sharing.

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Low Spoon Peanut Butter Cookie Recipe:

Ingredients:

1 cup of peanut butter

1 egg

1 cup of white sugar

Directions:

Preheat oven to 350

Combine ingredients. Bake for about eight minutes

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Philly Cream Cheese Cookies

I simply love these cookies. They are different than the norm but festive and delicious.

Ingredients:

1 (8 ounce) package of Philadelphia cream cheese, softened

3/4 cup of softened butter

1 cup of powdered sugar

2 1/4 cups all-purpose flour

1/2 teaspoon baking soda

1/4 teaspoon mint extract

Combine ingredients. Allow dough to chill for 30 minutes. Preheat oven to 325. Bake 10-12 minutes. Makes about three dozen cookies.

Shortbread:

More of a classic type cookie. I love simple cookie recipes. They can allow those with chronic illness who are sensitive to take part in the cookies. I am not gluten-free but have a lot of abdominal issues and this cookie always sits well.

Preheat oven: 350

1 cup of butter

1 1/2 cups of all-purpose flour

1/2 cup confectioners’ sugar

1/4 teaspoon vanilla extract

1/2 cup of cornstarch

Being on your feet for too long is draining. I recommend sitting while making cookies. Using an electric mixer can help conserve energy as well. Take breaks in between, if needed. Rember there is nothing wrong with getting help baking or having someone bake for you 🙂

My family and I love this Gingerbread Cookie Recipe by Trisha Yearwood.

Ingredients:

  • 1 cup vegetable shortening
  • 1 cup granulated sugar
  • 1 cup molasses
  • 2 tablespoons cider vinegar
  • 1 large egg
  • 1 tablespoon ground ginger
  • 1 1/2 teaspoons baking soda
  • 1 teaspoon ground cinnamon
  • 1 teaspoon ground cloves
  • 1/2 teaspoon salt
  • 4 to 5 cups sifted all-purpose flour, plus more for flouring
  • Nonstick cooking spray, for the baking sheets and rolling pin

Preheat the oven to 375 degrees F.

For the cookies: In the bowl of an electric mixer, cream the shortening and granulated sugar together until light and fluffy. Add the molasses, vinegar, and egg and beat on high speed to blend thoroughly.

Sift together the ginger, baking soda, cinnamon, cloves, salt and 4 cups of the flour in a separate bowl. Add the dry ingredients to the creamed shortening and sugar and mix to make a firm, manageable dough, adding more flour if needed. Wrap the dough in plastic and refrigerate until firm, about 3 hours.

Then the super fun part! Cut cookies into tons of fun Christmas shapes using cookie cutters. Bake for 5 to 6 minutes.

What are your spoonie baking tips? What is your favorite Christmas Cookie recipe?

Hope

The pain intensifies as the minute’s drag by. There is an indescribable ache and stabbing pain nearly with each breath.  A sickening feeling overwhelms my body along with waves of nausea from the pain. As quick as possible I unsteadily get up as the urgency increases to get to the bathroom and on my way, I partly dislocate a knee.  Weakness consumes my body from lack of nutrition and hydration. Anxiety plagues the mind as I come up with theories of what is occurring.

Moments like these it is impossible to read or to focus for more than five seconds to pray. Moments like these are when I need hope instinctively. “Lament is a cry of belief in a good God, a God who has His ear to our hearts, a God who transfigures the ugly into beauty.” He promises no matter how dark, painful, and hopeless things feel that joy comes in the morning.

There are times when all looks hopeless to others that Christ fills me with His hope beyond explanation. On the contrary, I am sad to admit, there are too many times that my heart aches with sorrow and hopeless tears spill out.

There have been times friends feel so hopeless they have walked out of my life never to return. Countless times, doctors tell me things are hopeless that they are stumped. Thankfully, my Savior has never felt that my health is hopeless.

What are the things which leave you feeling hopeless?

Look! The days are coming when I will fulfill the promise I made to the people of Israel and Judah. In those days, when the time is right, I will cause a righteous Branch to sprout from the old stump of David’s linea.png

 

Hopelessness seems to fill this fallen world. Maintaining the hope that Christ calls us to have can seem like an impossible task. Hope is not a feeling. It is so much more to the believer. It is an anchor to our soul that connects us to Christ.

Advent is a time to rekindle our hope. The story of the birth of Jesus bursts with hope.  Jesus is the source of hope and furthermore our ultimate example of remaining hopeful.  The Lord is renewing our hope today through the first Sunday of Advent.

 

Look! The days are coming when I will fulfill the promise I made to the people of Israel and Judah. In those days, when the time is right, I will cause a righteous Branch to sprout from the old stump of David’s linea (1).png

Lord,

I am amazed at the way the whole Bible is connected to the birth of Jesus. I am amazed at the way that you are always at work mighty ways. Thank you for providing hope when all seems lost. Thank You for the joy You provide. Thank You for who You are. Thank You for the grace You provide.

I praise You for the hope found in Your Son, Jesus, Christ. Thank you for the renewed hope of Advent. Allow me to read the Advent story with an open heart and new eyes. I surrender this Christmas season to You knowing that You will do a new awe-inspiring work in me. Fill me up with You, Lord Jesus. Allow me to be a blessing to others.

Amen

Welcome December

I adore the Christmas season, it is absolutely magical. Beauty overflows all around from stunning lights to warm smiles to traditions and so much more. Christmas carols sweetly fill the air. The Christmas season brings joy as it reassures us gently that things will be okay. It helps us connect with our inner child reminding us of the wonderful Christmas memories. At the same time, it encourages us to move forward filling us with a hope like no other. It unites us with those we hold dear in our hearts. I cherish every aspect of Christmas.

Unfortunately chronic illness and the stressful demands that go with it does not take a holiday. The doctors appointments, treatment, and testing still must be done. Chronic illness tends to complicate things and get in the way of our joy during this season. It is easy to lose focus of the beauty in this season when we are consumed with emotion and pain. When the world seems to be caving in on us and everything seems to be falling apart. Chronic illness isolates us. We feel the effects more so this time of year. Finding a balance between doing things and resting becomes more difficult. For some, this season is depressing, reminding them of all they cannot do.

I hope you are able to take the time to rest and reflect this holiday season. Take to reflect about all the ways you have grown as an individual, all you have accomplished, all the blessings in your life, and everything you have overcome the past few months. You, my friend, have come so far. I am proud of you. You deserve to take time for yourself this busy season. You are an inspiration. Your story is breathtaking and laced with beauty along with encouragement it will change lives. I pray your strength is renewed. The Lord will bless you greatly this season, be open to all he has to offer for you.

I pray you would have a flare free Christmas season. I hope that despite your pain you are able to enjoy this season of blessing. Cherish every moment with those you hold dear to your heart. Hold onto the Christmas spirit. I pray that this season would bless you with little to no pain, plenty of spoons, memories, joy, and love. “It’s beginning to look a lot like Christmas.”

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My Advent Reading Plan

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I have shared many times that I tend to read a few books at a time, furthermore, it seems to an outsider that I over complicate my time with God. I enjoy hearing what others are reading for advent so I thought it would be fun to share what I am reading.

The Greatest Gift: Unwrapping the Full Love Story of Christmas

Hundreds of thousands of readers have already fallen in love with Ann Voskamp’s One Thousand Gifts, and this Christmas, Ann invites readers into the rich and meaningful celebration of Christmas we all long for — a celebration of the complete love story that’s been coming for you since the very beginning.

In what is certain to become an instant holiday classic, Voskamp reaches back into the pages of the Old Testament to explore the lineage of Jesus — the greatest gift.

Beginning with Jesse, the father of David, The Greatest Gift retraces the epic pageantry of mankind, from Adam to the Messiah, with each day’s profound reading pointing to the coming promise of Christ, so that come Christmas morning you find that the season hasn’t blurred past you but your heart’s fully unwrapped the greatest gift you’ve always yearned for.

Sure to become a holiday staple in every Christian home, The Greatest Gift, a New York Times bestseller, is the perfect gift for the holidays and a timeless invitation into the richness of the true meaning of Christmas.

The Women of Christmas: Experience the Season Afresh with Elizabeth, Mary, and Anna By Liz Curtis Higgs

Meet the women who played pivotal roles in Christ’s birth! Elizabeth is barren, yet trusts God’s promise. Mary is a virgin but says yes when God asks her to bear his Son. And prophetess Anna proclaims the Messiah’s arrival. Unpacking each verse from the Gospel of Luke, Higgs illuminates their love, faithfulness, and obedience to God.
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YouVersion App Devotionals:
From Darkness To Light, From Sorrow To Hope: Lessons from Jeremiah and Lamentations for Advent
Expectation. Longing. Yearning. These emotions fill our hearts during the season of Advent. Drawn from the Latin word adventures, which means “coming,” Advent is a time of anticipation for the celebration of Christ’s Nativity. It is also a period of preparation for our Lord’s Second Coming. Paradoxically, this holy season focuses our attention on the historical fact of Christ’s birth as well as on the promise of his anticipated return.
Waiting Here for You, An Advent Journey of Hope 
Advent is simply a season of expectant waiting and preparation. Join pastor and author Louie Giglio on an Advent journey to discover that waiting is not wasting when you’re waiting on the Lord. Take hold of the chance to uncover the vast hope offered through the journey of Advent. In the next seven days you’ll find peace and encouragement for your soul as anticipation leads toward celebration!
The Gospel of Luke.
Have you considered what you are reading for advent? Do you do anything else special during advent?

Shake it Off

Living with a chronic illness is a challenge beyond words when encountering people who don’t understand. We have all had an experience of rudeness beyond belief. There are stairs when taking medication in public. Rude remarks when using a walking device. 

 I cannot tell you how many times people have been disrespectful or stared at me because I use a wheelchair in a store. The majority of the time people either stand in front of me, unwilling to move or practically run away. People act like I have the plague. I have heard over the few years I have used a wheelchair in a store that I am too young to use one or too pretty. The stairs and remarks make me feel like I owe people an explanation. However, I do not need to explain my life to everyone I encounter. If the right doors are open to education someone I don’t mind but there shouldn’t be a social pressure to explain it all. 

 Many people doubt the intensity of our pain and they question if we are indeed really sick. No one seems to understand battling against your body and taking care of yourself is a full-time job. Simple tasks are draining. Some people go out of their way to upset us or to be rude. They offer unnecessary options on how to break free of the chronic illness chains.

 

Too often Spoonies lose friends due to their illness. Some people want absolutely nothing to do with us while others act strangely towards us. 

Too often people judge us before they get to know us. People treat us at times like we are nothing or are stupid. 

Too often we hear phrases like: 

But you don’t look sick

You need to be more positive

Have you tried…

You’re too young to be sick

It must be nice not having to go to work/school

You’re just having a bad day

You need to get more exercise

It’s all in your head

Maybe if you got out more

These things get under a spoonies skin, to say the least. When people mistreat you, SHAKE IT OFF. It is not your fault. Don’t let them get to you. You are an amazing person. Even though you are ill, you are so valuable. You have so much to offer this world. Shake off the stares, Shake off the negative and nasty remarks, Shake off the heartbreak…. Shake it off.. It’s gonna be alright

Hold your head up high, cause it’s gonna be alright. You have so much courage. You are an inspiration for thriving despite every setback. Sending lots of spoons, prayers, and hugs. ❤