Shake it Off

Too many people are rude to Spoonies. Many people doubt the intensity of our pain and they question if we are indeed really sick. No one seems to understand battling against your body and taking care of yourself is a full time job. Simple tasks are draining. Some people go out of there way to upset us or to be rude. They offer unnecessary options on how to break free of the chronic illness chains.

 I cannot tell you how many times people have been disrespectful or stared at me because I use a wheelchair in a store. The majority of the time people either stand in front of me, unwilling to move or practically run away. People act like I have the plague.

Too often Spoonies lose friends due to their illness. Some people want absolutely nothing to do with us while others act strange towards us. 

Too often people judge us before they get to know us. People treat us at times like we are nothing or are stupid. 

Too often we hear phases like: 

But you don’t look sick

You need to be more positive

Have you tired…

You’re too young to be sick

It must be nice not having to go to work/school

You’re just having a bad day

You need to get more exercise

It’s all in your head

Maybe if you got out more

These things get under a spoonies skin to say the least. When people mistreat you, SHAKE IT OFF. It is not your fault. Don’t let them get to you. You are an amazing person. Even though you are ill, you are so valuable. You have so much to offer this world. Shake off the stares, Shake off the negative and nasty remarks, Shake off the heartbreak…. Shake it off.. It”s gonna be alright

Sending lots of spoons, prayers, and hugs. ❤

Spoonful of Spoonie Encouragment

Mornings for those with a chronic illness are a struggle beyond words. Waking up and willing our bodies to function is a fight. Here is a spoonful of encouragement for spoonie warriors. Happy Monday, brave friend!

You have victoriously made it out of bed this morning. The symptoms and pain are already overwhelming, but you’ve got this. You only need to take today one minute at a time. You have all the strength you need, even though it might not seem that way. Anxiety and depression attempt to dictate your day. Take a breath. Take a break.  Get some rest. Keep fighting to make today the best day possible.

You have been chosen to walk this path. It is one filled with heartbreak, disappointment, and setbacks. Walking the path of someone who is chronically ill is a challenge to say the very least. Being sick has most likely disrupted your flawless rhythm with life. It has stopped you dead in your tracks. Your illness has tried to toss your dreams out the window.

Though this path is difficult, I assure you there is a lot of beauty to be discovered. Sure life is not what it used to be, but the song you sing is just as beautiful. There is hope, joy, love, laughter, and life to be found on this path. You will be able to recreate your wonderful dreams. You are still you, despite your illness. You are an amazing and beautiful person with a flawless story and a huge purpose.

    There will be days that you become overwhelmed and feel completely alone. Your feelings are understandable, however, I promise you, you do not walk alone on this path. There are people who care about you, people who understand how difficult the journey is, and people who want to support you.

I am proud of all you have accomplished. I know you will thrive today. This week will be lovely simply because it is the only choice. While you don’t need to be positive all the time you need to take baby steps forward. You are doing amazing. Raise your coffee (or tea) to a great week warrior!

Happy Monday

Happy Monday, precious friends! Monday’s don’t have the best response in our society as we tend to focus on the negatives instead of the positives of the week ahead. Monday’s might not be your favorite day, but it is a lovely reminder that you have been blessed with another week of opportunities. Yes, there are plenty of struggles you will encounter and things you would prefer not doing but there are many positives of a new week. Pause to take in the simple treasures of life. Greet this new week with your beautiful smile and open arms. You will have victory over this week. You will be a blessing to a number of people. You, my friend, will thrive.

From Honest Moments With God:“My soul is dry and thirsts for You, True God, as a deer thirsts for water. Why am I so overwrought, Why am I so disturbed? Why can’t I just hope in God? Despite all my emotions, I will believe and praise the One who saves me, my God.” Psalm 42:1 & 11

“My soul is dry and thirsts for You, True God, as a deer thirsts for water. Why am I so overwrought, Why am I so disturbed? Why can’t I just hope in God? Despite all my emotions, I will believe and praise the One who saves me, my God.” Psalm 42:1 & 11

God,

Increase our soul’s thirst for You, the Living God. You have seen the tears cried behind closed doors. The ones in the dead of night. You understand the heartbreak of shattered dreams. The depth of the effects of broken relationships.

People mock me and question my faith. Asking where You are in my time of need. They question Your goodness. Question how You could allow suffering. I will remain unshaken, firm in Your promises.

Help me in this holy time, at Your feet, to pour my soul out to You. Enable me to be transparent. I surrender every burden, fear, question, and emotion. Empty me of myself. Free me from all the clutter in my heart and mind. Consume me with Your Spirit.

Direct me in Your precious love. Renew my hope day by day. You are my mighty protector. I rejoice in Your sovereign name. I have witnesses Your goodness all the days of my life. I extol Your Majestic name.

Amen

 

 

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Birthday

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My parents and I all have our Birthdays in January. What’s even more unique is my mom and I share a birthday, which is today January 28th. The first six years of my life I was an only child. I adore being a big sister, but I am grateful for the years I spent as an only child. I believe those years allowed me to develop a special bond with each of my parents. “You love your parents, but as you get to know them you fall in love with them.” I believe this quote is absolutely true. As a child, our parents are heros. As teenagers, we drift away from our parents. We are so consumed with our lives, we don’t take enough time to get to know our parents and cherish the small amount of time God lends them to us. I cherish the time I have with my parents.

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My mom and I have always been close. She is the reason I am who I am today. I couldn’t ask for a better mother. God has truly blessed me. She has been with me for every appointment, ER trip, urgent care trip, every test, and every surgery. She’s the one who calms me down when Prednisone makes me crazy or when I’m just overwhelmed with everything. She is a huge encouragement and the source of strength. I am blessed that she introduced me to the Lord and raise me in a church. I am blessed that my mother encouraged and allowed me to go on missions trips and retreats. She always encourages me to lean on the Lord and to find strength in him.

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I wish I could remember all the wonderful moments we shared together as I was growing up however my illnesses have impaired my memory. I cherish the few things I remember, the stories I am told of these moments, the home videos and countless pictures I have.

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I know my illness is extremely difficult for my mother, which is heartbreaking for me. She is an admirable woman. I can only strive to be half as amazing, compassionate, and loving as she is. The strength she has always leaves me in awe. She has overcome and given so much in her life. I God every day that He blessed me with my mother. Thank you is not enough for everything she has done for me. HAPPY BIRTHDAY MOM!

Today, at 2:14 pm I turn 21 years old. I did not think I would see this day. There were many times I wondered if I would wake up in the morning or if the Lord would send his angles to carry me to his arms. I’m only 21, but I have fought for my life a number of times. There are a thousand reasons I should not be alive, but for whatever reason the Lord has allowed me to still be here. 

 Most people cannot wait for their 21st birthday, however I am not most people.As my birthday approached I began to dread it. Another year has passed, making me yet another year older. 21. I have never been a fan of getting older. For as long as I can remember I wanted to stay in toy land, to stay a child. For me growing up was something I dreaded and feared. Until recently I never understood why. Now I am beginning to understand this bazaar fear. The fear is rooted entangled with pain. I began have chronic pain around six years old. Continuously I have associated getting older with more chronic pain as well as my health becoming more complex.

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Though I’m not thrilled to be 21, I am grateful to be alive and to have another year. Today is a day to celebrate everything I have overcome, being alive, and what I have accomplished. While I was 20 I began my Facebook page, this blog, survived my Reclast experience, achieved a 4.0 GPA, and other various small accomplishments. I look forward with hope to what will unfold during my time as a 21 year old. I hope to achieve at least a 3.8 GPA, get my kidney stones to stop, stabilize my health, grow my blog, become closer to God, and be able to go away to college in the fall.

 “For you formed my inward parts; you knitted me together in my mother’s womb.  I praise you, for I am fearfully and wonderfully made. Wonderful are your works; my soul knows it very well. My frame was not hidden from you, when I was being made in secret, intricately woven in the depths of the earth.”

Jeremiah 29:11 “For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope. Then you will call upon me and come and pray to me, and I will hear you. You will seek me and find me, when you seek me with all your heart.”

I hope you have a terrific day, thank you for stopping by! Sending lots of spoons, hugs, and prayers ❤