Pictures of The Past

A picture is worth a thousand words along with a few dozen memories and emotions. Capturing the past the heartache of what once was bubbles over.  Sometimes, I avoid looking at my photos, but other days the temptation of a walk down memory lane wins. The days when laughter was plentiful and sleep was not vital.  Staying up half the night with friends was normal. And of course, anything seemed possible. Not knowing that all too soon minor aches would explode into full blown take over your entire life chronic illness.

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I look at the girl in those pictures overflowing with laughter and pure joy. The insecurities going through my mind as a teen now seem silly. Things weren’t perfect, but they appear that way. The past usually seems easier as we look back.  There are still days I miss the people who left me. The friends who said they would be there, but left.

 

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It’s true, you adjust to the chronic illness life, but little things happen that make you grieve your past. I try to not get carried away in the what if I wasn’t sick game or the things I miss. Everyone asks what you miss most, in reality, I doubt any of us can narrow it down to one thing. I miss how active I once was the energy. Being out in the sun or at the ocean. I miss dancing, hiking, and doing mission work. I miss my hair. Not needing to worry about passing out or running to the bathroom. I miss my old bad days.

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All in all most days I do well with being chronically ill emotionally. I have adjusted and know in my heart that God will use all the pain, symptoms, and every other little chronic illness thing for His glory. He has allowed Lupus and these illnesses to be a part of my life, therefore, I am okay with where I am. Yet, I am still human. I become anxious, overwhelmed, grieve, and ride the roller coaster of emotions. After last April, my emotions went on vacation, but they are back and we are learning how to live together once again.

To be honest, most days are hard in some capacity. Currently, this includes minor meltdowns, severe chest pain, dizzy spells, joint pain, and bladder pain. I have another halter monitor (I will do a review- if I don’t throw it in a lake first). A bladder infection with a side of kidney stones. To top it all off my summer class final is coming up. My liver is holding up though I am cautious due to the fact I need to taper off steroids.

This post is a bit long, but I will be doing a Bible Study update post to let you know more about online Bible studies, which I am excited about!

Can you relate to anything in this post? If so, let me know in the comments! You are the reason I share about my life as a spoonie.

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Memories Replay

Memories replay

Of dark gray days

Standing in the rain

With all the pain

Never forget

Every moment that took your breath away

When there was nothing to say

The scars are still there

Know that he cares

Safe in his arms

Away from harms

She told her everything will be okay

Sun will start shining brighter today

She is loved and accepted that’s where

She belongs

They’ll help her thought the rain

Yesterday, somehow faded away

Dainty soft pink slippers twirling high on toes few doors remained closed life an open book

Tapping rhythm to a new song always found a safe place to belong never even had to look

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

The whole world lay in my back yard the only attack needing to be dodged was by dragons

Only things exist are what we created, only innocents of the wild imagination

Exploring wonder land unplanned adventure in all kinds of weather

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

The world seemed against me could not yank free from the chains oh the lies being feed to me

Unknown sadness filled my eyes had no reason but no choice I had to cry

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

Finally I belong; these memories blanket my soul uncovering things that were buried in that hole

Overwhelmed with agape to the point of speechlessness anointed with blessing

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

Oceans away miles apart I long for the peace coved in that place the ground covered in grace

It is how I escape all the troubles of the world love falling like rain soaking everyone in its embrace

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

Only pictures remind of the past, memories fade with rain cause we know they never truly last

Pain consumes every inch of my being prying me away from the life that once was

Learning to dance in the storm though I pray for life to return to the norm

Feels like just yesterday somehow it just faded away

Now I lay counting laughter and tear drops

My Faith

I’m fairly certain that I have mentioned my faith on my blog a couple of times, briefly. I have been a Christian nearly my entire life and my faith plays a big role in my life. I was saved at the early age of three years old in Sunday school.  People tell me from a young age I knew a lot about the Bible. I had an extremely close walk with God. I would tell my mom that God talked to my heart. I understood that prayer was a dialogue not a monologue. I understood the meaning of communion and a lot of Bible stories. I adored going to church, Sunday School, and Vacation Bible School. With all my heart I wished that Sunday School was five days a week and actual school was one day a week. Things made more sense to me at church and I fit in much better.  I counted down the years until I would be able to join the Youth Group. My favorite television shows included The Donut Man, Veggie Tales, Mrs. Charities  Dinner, and other shows on the Christian station. Outside of the American Girl Doll books every book I read had a Christian aspect to it. Despite the fact I was a shy girl, I was bold and confident in my faith growing up. I wasn’t afraid to speak up about it, even if that meant I did not have many friends and that kids would tease me. It was me and Jesus and that is all that mattered to me.

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Once my middle school years rolled around I overflowed with excitement because I was finally old enough to join the Youth Group. I was extremely involved in my church during my middle school and high school years. Anything and everything I could do, I did. I spent as much time as possible at church. During my middle school years in addition to Youth Group I volunteered at every function the church had, was in the bell choir, puppets, and attended every youth group meeting. I enthusiastically participated in 24 Hour Famine. Just before we broke our fast I grabbed my friend informing her I couldn’t see, then passed out. Once I woke up I wanted to know when the next famine was. Despite passing out I had a lot of fun.  I did not have many friends at school so I would bring my awesome looking Revolve Bible to lunch to read. (If you are a teen girl check out the Revolve Bibles! They look like magazines, are super cool, and have lots of epic things in addition to being a Bible.)

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Even though I struggled with my faith a bit in high school, it was still vital to me and I was just as involved in my church. I went on missions trips with the Youth Group and feel in love with mission work. I went on several retreats as well. I still adored reading. The Christy Miller series by Robin Jones Gunn impacted and changed my life. During my teenage years I battled some depression. It was difficult but in the end I became closer to God. I learned many valuable lessons through that chapter. Things changed in my home church, some ministries crumbled. I was on a committee and still volunteered frequently. I also helped run a retreat for five years. When I was sixteen years old I went to Taize France with the conference through my church. It was a pilgrimage and an indescribable experience.

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My dream had always been to go to a Christian college, which is what I did once I graduated high school. However that was not God’s plan for me. (Of course I was less then happy about it). The school I choose was three hours from home. I had high hopes for my health. I thought the doctors there would be the best and would help me feel better. But that was not the case. None of them wanted to help me and my health quickly declined. After finding blood in my urine over Thanksgiving break I had to stay home indefinite.  Having to come home was bitter sweet. I knew I had to do it yet I wanted to prove that I could be on my own. A lot had changed in my home church, as I mentioned before. As much as I loved everyone, I wanted a fresh start. Something different. But that’s not what God had in store for me.

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I have been back home for a little over a year now. Things have gotten better at my home church. The spiritual growing pains have eased and I am able to see how blessed I am to have my church family. My walk with God isn’t where I want it to be. There is always room to grow. I have learned to trust him in new ways. I know that He will guide me and provide for me everything I need. Though I don’t know what the future holds, God does. I am content where I am right now, waiting for His direction and learning.

God Bless. Sending lots of Spoons, prayers, and hugs ❤