Shake it Off

Living with a chronic illness is a challenge beyond words when encountering people who don’t understand. We have all had an experience of rudeness beyond belief. There are stairs when taking medication in public. Rude remarks when using a walking device. 

 I cannot tell you how many times people have been disrespectful or stared at me because I use a wheelchair in a store. The majority of the time people either stand in front of me, unwilling to move or practically run away. People act like I have the plague. I have heard over the few years I have used a wheelchair in a store that I am too young to use one or too pretty. The stairs and remarks make me feel like I owe people an explanation. However, I do not need to explain my life to everyone I encounter. If the right doors are open to education someone I don’t mind but there shouldn’t be a social pressure to explain it all. 

 Many people doubt the intensity of our pain and they question if we are indeed really sick. No one seems to understand battling against your body and taking care of yourself is a full-time job. Simple tasks are draining. Some people go out of their way to upset us or to be rude. They offer unnecessary options on how to break free of the chronic illness chains.

 

Too often Spoonies lose friends due to their illness. Some people want absolutely nothing to do with us while others act strangely towards us. 

Too often people judge us before they get to know us. People treat us at times like we are nothing or are stupid. 

Too often we hear phrases like: 

But you don’t look sick

You need to be more positive

Have you tried…

You’re too young to be sick

It must be nice not having to go to work/school

You’re just having a bad day

You need to get more exercise

It’s all in your head

Maybe if you got out more

These things get under a spoonies skin, to say the least. When people mistreat you, SHAKE IT OFF. It is not your fault. Don’t let them get to you. You are an amazing person. Even though you are ill, you are so valuable. You have so much to offer this world. Shake off the stares, Shake off the negative and nasty remarks, Shake off the heartbreak…. Shake it off.. It’s gonna be alright

Hold your head up high, cause it’s gonna be alright. You have so much courage. You are an inspiration for thriving despite every setback. Sending lots of spoons, prayers, and hugs. ❤

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Challenger

I have overcome so many challenges in the past few years. I encounter new challenges daily. I battled depression a bit in high school, low self esteem issues, 5 surgery’s, almost falling into a coma, a concussion, and numerous additional health issues. The health issues have been the most steady issue in my life for at least five years now. I have grown as a person through it all developing more patiences.

I honestly thought my Jr year of high school that I had hit rock bottom with my health. I did not yet have a diagnosis. Yet I was encountering what seemed like every symptom under the sun, from pain to seizures, to rashes. I had seen a few doctors who were absolute quacks. I seriously question their degree. One never ran any tests diagnosing me with Fibromyalgia. Then putting me on Cymbalta and he kept upping the dose. I eventually just stopped taking it because I had become so ill from the medication. Though Jr year was difficult, it was not rock bottom with my health.

I love college but my college years have been laced with many challenges. I had pleurisy, a kidney infection, and began passing stones. I got undiagnosed with Lupus and taken off my medication then rediagnosed. Many of you know I was in the hospital last fall due to an allergic reaction to Reclast. Now I am working through a concussion, kidney stones, flare ups, and tapering off steroids. There is never a dull moment.

I have had my share of challenges but I try to be content wit whatever season of life I am in. Of course that is another challenge. I know the Lord has a beautiful purpose for my life and will use my pain to bring him glory. Right now I am working on strengthening my relationship with him. Making that my number one priority as I face new challenges.I know the Lord will provide all I need to get through each day and I am grateful for that.

If you are facing challenges today, I want you to know that you are not alone. Don’t be afraid to reach out and to tell people that you are struggling. You probably don’t want to make a billboard announcing this but telling trust worthy people such as a family member or a friend. Talking to someone makes a huge difference. I also encourage you to bring your burdened heart to the Lord. Open up and let it all out.

It is okay to grieve what you have lost but don’t forget to also be grateful for all that you have. I want you to understand that just because you cannot do something that does not make you less of a person or a failure. You are beautiful, valuable, and precious. You have an amazing purpose in this world. You will make a difference.

Whatever challenges you are facing remember this is only a season in life and it will pass. Sending spoons, hugs, and prayers ❤