Great Spoonie Volgs

YouTube is an interesting place. Allowing for entertainment, vlogging, and education. I never used Youtube much until I went away to college and needed to force myself to rest. Of course,  finding tips for living with a chronic illness and encouragement was a plus.

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Kelly Patricia is one of my favorite YouTubers and a huge inspiration. Kelly has a gift for encouraging others. She also has amazing faith. Kelly has an interesting mix of chronic illnesses and is still partly undiagnosed. Her story is extremely relatable, especially with the struggle of finding decent doctors. Some of her illnesses include IBD, Endometriosis, and Arthritis.

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Lets Talk IBD

Maggie has a great channel featuring Inflammatory Bowel Disease. She has a J-pouch and information on doing feeding tubs as well as coping tips for life with a chronic illness.

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Inflamed and Untamed

Sarah also has IBD and is an excellent advocate. She is blunt. She has battled many surgeries, hospital visits, and flares. She has partnered with the Chrons and Colitis Foundation. She has been on multiple IBD discussion panels and has a lot of knowledge about IBD.

 

Emotional Health: IBD

Personally, I don’t like the words mental health. I feel like it has a negative perspective in society and is associated with more or less being crazy. I prefer the term emotional health, yes I am aware there isn’t much difference but that’s what I call it. Anyways. This post isn’t about which term is better. Today should have been yesterday’s post but the day slipped away from me. We are talking about emotions and IBD. There are dozens of aspects of emotions with chronic illness in general. I am going to just survey this topic in this post and attempt to keep it short.

Everyone is unique in their illness and emotional health. When a person gets emotional sometimes, the medical field blames everything on the emotions not acknowledging it’s a balance. From a clinical point of view, personally, I have low scale anxiety. I had clinical depression as an adolescent, but do not right now. That does not mean I don’t feel depressed at times. It means it isn’t a chronic aspect of my battle that impacts daily life. Most medical professionals cannot understand why I am not mentally unstable, but I say go with it.

Medications impact emotional health as well. Last year, I went through a season where I had no emotions. At least that’s what it felt like. I had went into survival mode than high doses of Prednisone and my emotions went on vacation.  In addition, medication can change how you look which in turn impacts your emotional state.

Even though I am not diagnosed with severe emotional disorders, it doesn’t make the emotions easier to cope with. There are countless emotions that come with medications. Tons of stress and frustration from doctors. The isolation of illness. Not to mention the anxiety that is through the roof. Anxiety with where are the bathrooms. Will I have an accident? Will I be alone forever? How am I going to work? Will it ever get better?Logically I can answer these questions but during an anxiety attack logic only gets you so far.

Learning how to cope is a journey with emotional and physical health. Talk with someone you trust or write. Releasing the emotions is helpful. Being creative is good for emotional health. Many people draw, color, or listen to music. I am a fan of online support groups as well as raising awareness for my illnesses. The Crohn’s and Colitis Foundation also has helpful resources for mental health. In addition, you can check out this Patients Discuss Impact of IBD on Mental Health video. Lastly, a big key to my stability is my faith. It does not necessarily cure an emotional disorder but it makes it more manageable.

 

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Fabulous Friday

Chronic illness and medications change us in various ways. Hopefully they improve our health to some degree. Sadly side effects come with every medication out there. If you are chronically ill there is a good chance you have heard of the lovely medication prednisone. Most people have a love hate relationship with prednisone.

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Today I am going to address only one of the side effects of prednisone. Moon face also known as chipmunk cheeks. This occurs because prednisone makes the body retain salt and water. The face swells up and becomes round. In perspective moon face is honestly not that bad. It is simply annoying.

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Moon face tends to effect self image, negatively. If you are dealing with moon face currently, you are not alone, I’m right there with you. Yes, it stinks. It is difficult to deal with. Remember though you are on this roller coaster ride of a medication for a reason. It is tor help improve your health and to help you feel better. Hopefully it will throw you into remission quickly. No matter how round your face is you are still you and you are absolutely beautiful! Neither you beauty or your worth is measured by how you look today or how you use to look before your illness attacked. You are an amazing person, with so many talents, you are a warrior, you are courageous, and so much more.

I know many girls, myself included enjoy wearing some make up from time to time. You are perfect just the way you are. Beautiful without make up. If you do wear make up I want to share a few YouTube predisone make up videos with you. I personally do not wear make up everyday. However every so often I like to pretend to be normal. Wear make up, do my hair nicely, and dress up a bit.

Makeup for a Prednisone Moon Face! 

https://www.youtube.com/watch?v=C16C4aHZZfI

Quick and Easy Tutorial for Moon Face due to Prednisone

List of Make Up Products I Currently Use: 

Bareskin Foundation By: Bare Minerals 

Concealer By: Bare Minerals

Bronzer Booster By: Physicians Formula

Pumped Up Colossal Mascara By: Maybelline

Silkissime Eyeliner By: L’oreal

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Share your moon face photos in the comments.

Hope you are having a fantastic Friday! Sending lots of spoons, prayers, and warm hugs your way ❤